Well I'm happy to report that the family is finally getting into a stable routine, much happier and learning how best to cope with the challenges ahead! This post will all be rainbows and butterflies. Thank God!
So since my last post we have had 3 doctor, 6 therapy and 2 eval appointments for Cash. In total, starting next week we will have 16 therapy and 3 doc appointments scheduled each month for at least 2 years, which is more than a part time job by itself. Thankfully we have the greatest nurse to help me, and its summer for Savy allowing for more flexibility.
The oxygen situation has improved tremendously, and after our next test on July 5th, I'd be surprised if he's still needing it, at least not more than an as needed basis.
Cash is such a strong little boy. He goes through therapy fighting the whole way. Its humbling to say the least. So much character in such a little man. His smile is beautiful, and he is starting to gigle a little bit. Oh, and he gives us kisses. The sloppiest, wettest goodness anyone could wish for! I admit, I cried like a 5 yr old little girl the first time he did it. There was a time I wasn't sure I'd ever get it.
Regarding the therapy, I must give a huge thank you to our friend Brenda Hudson for getting it going for us. She took him on as her PT patient then got us our OT as well! She is a big part in all the little victories we have experienced recently. Thank you Brenda!!
Lets do a recap of our Victory list shall we...
Much improved head control
Eats like a champ, up to 6 oz now
Starting on cereal
Found his hands
Better eye tracking
Smiles galore
Ending 2 meds next week
Discovering his personality
Knows his mommy, daddy and big sisters voices
Smiles more with Savy than anyone
Rarely spits up
Lung strength is way up
Can turn his head when on his stomach, when he gets pissed, not all the time, but still much better
Sleeps 10+ hrs each night with one feed usually around 3-4am
Loves mobiles
Holds and shakes his rattle when interested
One other thing, my boy is handsome. Seriously, this kids eyes are more blue than the Carribean. He has slightly wavy dirty blonde hair. A nicely shaped nose and perfect puffy lips. I'm proud. What can I say?!
He loves to be read to, but you better make sure he can see the pictures. He is as strong as an ox. I aint kidding, this kid can almost do pullups!! In a month or two, with all this working out he's getting even stronger.
Momma is fully back to work, and I'm, well, busy. I do wish I had been able to keep the online store we purchased for me to work from home, but as Cash' appointments piled up and some other circumstances arose we sold it. In due time I will be working as Franek Consultings meeting planner, marketing/sales. Hopefully that will happen by the spring.
Savy is at camp, and each day I get the mail hoping for a letter, but no go so far. I sure do miss her, but I'm guessing she's having the time of her life. No time for dear old dad.
Last but not least, we have not forgotten the other babies in the NICU, as well as their parents; hope to start working on our foundation soon.
Thats it folks. Told ya nothing but rabbit farts and fairy burps this go round. Its all good at mi casa.
Oh, and I'm joining the church choir in August. Time to give back.
Peace out yall!
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