The RSV Incident

So after it was determined that Cash has RSV, back to Level 3, on the CPAP and 100% feeding tube meals ensued. This was not only difficult to see and hear, it was also a sure sign that any chance of coming home without a feeding tube and o2 was basically impossible.

This setback has really gotten us upset. I just don't know how we have been able to "keep it on the rails" this last week. Once again the proverbial rug had been pulled out from under us, without notice, just days before we were to be home. Savy plays a big part in keeping us sane and preventing a complete meltdown. Her smiles, laughter and funny antecdotes definitely help keep our spirits up. We thank her and the big man upstairs every day for this. More than once she has unknowingly pulled me out of a slump.

Kimberley and I are both as fragile as fine china. Everything and anything can set us off. Our nerves are shot, fuses short and bubbles ready to burst. It really sucks. The good thing is we both recognize this, and we offer more comfort, hugs and talks than ever before. This has truly been a test, no doubt one that will make us stronger. An example of my short fuse: Last week we headed to Cy-Fest down the road from us to hang with friends and see Kevin Fowler. After seeing a line of cars to park, and being told that we would have to walk a fair distance from a parking lot about a mile away, I just said, "Sorry babe. Im outta here". Took me about 5 seconds to say, screw it. Not worth getting my blood pressure up anymore than it was. I also barked at the after school care lady for not having the normal gate open when I picked Savy up, and the nurses and docs at TCH don't stand a chance. I'm sure I am quickly earning a reputation up there. All of these complaints are probably justified, but I would normally handle them better. My apologies to anyone in the path of Hurricane Franek.

Bottom line, I'm at my tipping point. If I don't get some positive news very soon, I'm going to lose it.
This leads me to today. Cash is 8 days into this RSV setback, and finally doing good enough for the doctor (who I like btw) to try and get him off CPAP and back on the nasal cannula. This is a tall order considering Cash is still on level 8 with 38% o2 with the CPAP. As you may recall, we want 20% o2.
At any rate, we need your prayers, again. We need it for his health, AND for us to get something positive. Good news refills our tank so we can continue down this very long road.

Thanks and God bless.

Sorry for being short, negative and all around an ass.

Here are a couple pics of our most recent Cash delivery.