Met with Dr. Whitehead today while he made his rounds today. Again he says Cash's head doesnt have alarming pressure or growth, so he doesn't want to do surgery at this time. So I just asked for the straight talk on this topic, which he gave. Keep in mind I'm paraphrasing; but the following is about the closest as I can get it. Also, its important to be reminded that doctors are hesitant to make long term prognoses, or even allow themselves to get painted in a corner. Nevertheless, our conversation was candid and much appreciated by me. The term for Cash' condition is Hydrocephalus. Literally: Water on the brain. Learn more here: http://www.medicinenet.com/hydrocephalus/article.htm
Here goes.
Dr. Whitehead says: At this time, his head circumference is above normal but not alarmingly so. It remains soft, and seems to be re-absorbing the fluid at the same rate it is being produced. This is good. Based on my experience children in his situation typically do not have to get a shunt or a reservoir. I will maintain vigilant however, and will let you know if I think we need to reduce the pressure in the future. By 40 weeks(currently 34 weeks) we should have a good picture as to how to proceed. Hopefully by then the pressure that is there is at the least less than now, and even better, becoming less. It is important to know that Cash has sustained a considerable amount of damage to his right side of the brain. Currently the left side has had minimal damage. The best thing however, is that he is so young, the development of his brain continues and most likely will help compensate for some of the losses, but not all. Cash has a long road, but considering where he has been and what he has gone through he is doing well. Every day he maintains the current pressure without getting worse, the better. The hope is that he will eventually repair the "leak", and not have the additional pressure in the future.
I know this is a lot. especially for a parent who hasn't had to have a conversation like this before. I consider this conversation positive. He didnt tell me anything I didnt already know, and he gave me hope we can avoid a surgery for an already stressed little boy.
Yall keep praying for him, and remember to kiss your kids!
Matt,
ReplyDeleteThank you so much for the updates. I know it must be hard to put yourself out there and be so open about Cash and his situation. We continue to pray for Cash and your family as well as all the doctors and nurses.